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They Laughed, So I Fought: My Journey to Patient Advocacy
You don't just fall into patient advocacy or wake up one day thinking this is what you feel like doing with your life. It is something you learn to do when the system fails you. As a child I was regularly sick with something or the other, nothing big but still noticeable and every day i would sprain my ankle. Eventually I started getting chronic infections, my heart was doing all sorts, I was struggling with my breathing, I would faint from time to time, had surgery, missed a

It’s Complicated
Feb 122 min read


Fear of consequences
Whilst waiting in the day surgery unit for my turn, I couldn't help but notice another patient who wouldn't stop talking and giving...

It’s Complicated
May 20, 20252 min read


Why does it matter?
There are a lot of different voices in the disability and chronic illness online community, and you're probably thinking, why does it...

It’s Complicated
Mar 24, 20253 min read


I'm a person, not a disease.
It’s funny being a patient because in the beginning you're desperate for help and answers, you then, eventually, find some answers and...

It’s Complicated
Mar 17, 20253 min read


The Social model of disability
What is disability? ‘You’re disabled under the Equality Act 2010 if you have a physical or mental impairment that has a ‘substantial’ and...

It’s Complicated
Dec 20, 20231 min read


Can my pain predict the weather ?
This hasn’t been scientifically proven, yet, but there seems to be a collie ration between barometric pressure and chronic pain. But what...

It’s Complicated
Jun 11, 20221 min read
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